"...MdDS is rarely recognized immediately and is often misdiagnosed as
Ménière’s disease, vestibular migraine, motion sickness, or even as a
form of psychosomatic illness.
MdDS is literally translated as the “sickness of disembarkment.” It is a
disorder of rocking vertigo and imbalance that starts after a period of
motion exposure, such as going on a cruise, flying, or even a long car
ride. Unlike short-lived land-sickness, MdDS can persist for months or
years."
~*~
At the end of August I traveled to Georgia. Upon returning I couldn't shake the feeling of still being in motion.
My flights coming home weren't particularly turbulent. I have traveled extensively since infancy, and have experienced my fair share of turbulence; I've criss-crossed the country in old pick-up trucks, responsimobile-type family vehicles of myriad variety, by Greyhound, and etc. I am familiar with that weird feeling of being in motion that goes away after a few hours.
This wasn't that.
I couldn't shake the feeling for more than a week. It was really bizarre.
I did a little googling and came across this condition of "land sickness" - which I read to be more or less what we landlubbers experience if we get on a boat. But I don't turn green on a boat, and I haven't ever experienced motion sickness that I can recall. Also, the focus was on boats, and I hadn't traveled by boat, so I set it aside. I saw MdDS mentioned, but didn't give that much thought because it was noted as extremely rare so it very likely wouldn't apply to me. I noted a few peculiar details, and later mentioned it to my husband in passing. We agreed it was interesting.
Then the symptoms dissipated and I forgot about it. Happily.
Last Thursday, my family embarked on a fall break adventure, a 4-day/3-night/1,293-mile circular road trip around the other side or Oregon. We went to Joseph, Hell's Canyon Overlook, Hines, the "scenic route" to Klamath Falls, to Crater Lake (and all the way around Crater Lake), to ...eventually... I-5 and back home. That's the highlights...but I'm not sharing it to brag. It was incredibly beautiful, fun, all that...but those areas of Oregon are very, very rural. The roads aren't always the smoothest.
Having grown up where I did, and having grown up as "junior navigator" through countless road trips (childhood to present), I'm used to mountains and trees. Specifically pine trees. Those great huge ones that reach up to kiss clouds. Most folks I knew growing up remember those mountains even if they never returned to that place.
Eastern and southeastern Oregon is incredibly beautiful. High desert with evolving landscape as you go through it, with oases of ranch land that offer green relief to the browns and yellows...and in the near and middle distance, always, the foothills and mountains. And their trees. Those pine trees that are for me reminiscent of my hometown hills.
Except...I have this weird problem with those trees. The tall pine ones.
This problem started something like 20ish years ago. I can't remember exactly. It only happens if I'm in a car in motion and not driving. I can drive in the same places and conditions and am perfectly fine. But if I am in the passenger seat or in the back seat, going through mountains covered in pines...in places like Colorado, Arizona, Oregon, Washington, etc...I cannot look off to the distance or upward (though I can look at trees at eye level near me and sometimes looking downward) without experiencing something akin-to-but-not-exactly-like vertigo.
This isn't any secret to anyone in my immediate family, since we've all been on road trips together for decades. It's a known thing, and I just take it into account when we're traveling through that type of terrain to put down the sun visor as a sort of visual shield. I try focusing on conversation or things that we're passing near by. I am unsure if this weird quirk of mine has ever come up in conversation with friends or other family. I can't remember.
I can remember that I did not always experience this. I traced back in my memory to the first time I remember experiencing it, and it was about 2003 or so. I might be off, but I remember it was back when I lived in Washington state, and I was frequently on the road, and I noticed something that I remember "seeing" as a kid. When I look at pine tree-covered mountains, I know that the trees are straight up toward the sun, but I see them at odd angles, and not all going the same angle. If I've commented to what I see, nobody has "gotten" what I meant.
And I'd never been particularly bothered by the visual distortion in and of itself ...until the first time I thought I was about to throw up and had to pull to the side of the road.
If I am standing still, the trees don't bother me. If we're driving slowly (like through a National Park or preserve), no big deal. It's strictly while in motion but not driving (and that makes sense because focus is on the road while driving, generally).
I wouldn't even bother sharing the timing of this weird quirk that began a couple of decades ago, except for how that timing occurs with something else that happened at about the same time, and why that becomes important in light of another peculiar detail about MdDS that I returned to after piecing these things together.
Another tiny tidbit, so to answer before the question is asked, yes...I have history with migraine. Several people on my maternal side deal with seasonal migraine. Mine was menstrual, but only until I started hormonal birth control, which brought the attacks under control. I did not experience menstrual onset attack after having my first child, though I still occasionally experience a kind of visual "halo effect" attack. I have another chronic condition that is seasonally-affected, so I find the seasonal elements interesting, in conjunction with the hormonal effect.
And honestly, I wouldn't share that tiny tidbit here at all were it not for the fact that the timeline from 20 years ago becomes relevant alongside the hormonal piece mentioned when taken together with the fact I was a 6-time egg donor and started a 7-th cycle with the hormones that was canceled mid-cycle.
I've mentioned the fact of my egg donation in certain circles, and there are a couple of (now archived) blog entries here where I discussed it. There is much that I could say about egg donation from the long-lens perspective of hindsight, positive and less so. That is a blog entry for another day. What matters here, as it relates to everything else, is the fact there is so little research on the long-term effects on donors themselves.
That is changing, I am happy to be engaged with the research surrounding that.
Why that matters to what I'm writing about is that one side-effect we suspect my donating contributed to was premature menopause. When I turned 45, we learned I have a couple of chronic conditions requiring lot of adjustments on my part. We learned at the same time that I was in full (premature) menopause. I had been saying for more than a year that something was off. I suspected but didn't know, and was laughed off. It was frustrating, but answered some questions.
I had not made the connection directly between egg donation and some of my earlier (perimenopausal) symptoms until a recent interview with a researcher about my time as a donor. We covered a lot of history fairly quickly, and given her decades researching the subject, she was able to quickly throw a lot into a way I understood (and admired her skill in doing so).
Most of my serious dental issues began...my lower back issues began...my tree woozies began...my perimenopausal issues began...all in Washington state, around 2003 or so. I was an active donor in Hawaii from 1999 to 2001. I started a cycle from Washington for the same agency (on direct request for me specifically) in 2002 -- and the cycle was canceled on the intended recipient end mid-cycle, but I still took several of the shots.
Being an egg donor involves a lot of hormone injections to stimulate the process of oocyte maturation. There are potential health complications during the entire process that I never gave any thought to - despite the sheer number of eggs removed from me (it is seriously surprising that I never experienced ovarian hyperstimulation syndrome (OHSS)), especially my last complete cycle. I am presently in contact with the agency I donated through (which has changed ownership twice now) in an effort to obtain my old files. I'm not optimistic, but we'll see.
Anyway, fast-forward to returning from our fall break adventure through the other side of Oregon, and I'm still in motion. I started reading about MdDS again, and I tripped over this, from the same site linked at the top of this entry...
"...It
turns out that this under-recognized and understudied disorder affects
thousands of people every year, typically middle-aged women, though also
a fair number of men. Research into MdDS has shown that factors related
to the aging brain, hormonal changes, and stress contribute to the
vulnerability of triggering an episode. One could take 15 cruises in a
lifetime and have no problems, but the 16th one could trigger persistent
MdDS..."
I'm middle aged, I suppose, but even setting aside the physical aspects (back, teeth) of what hormonal aftermath of egg donation likely contributed to...it way well have contributed to other aspects of my lived experiences (visual distortions, halo attacks, perpetual motion).
I am not saying or suggesting that I have MdDS...I have not been to a physician for diagnosis. I have the symptoms, but not extreme. I fit the criteria, and resent it. I don't want some rare condition that makes me feel like I'm moving when I'm trying to relax...but it isn't life threatening, and doesn't interfere with daily living...so whatever. I'll keep doing what I'm doing and move on.
I am just feeling, for the second time recently, the sickness of disembarkment.